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Gharanth — Hypermobility Syndrome Stamp
Published: 2010-05-02 22:41:33 +0000 UTC; Views: 1037; Favourites: 23; Downloads: 12
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Description
I was surprised that there was nothing in the stamps that I could find for Hypermobility Syndrome.This condition is both painful and debilitating and often the sufferers are bullied.
I hope that this will help people realise that sufferers are neither lazy not clumsy, but coping with a condition that leaves them in pain.
I have this condition myself and find life frustrating at times.
For those that want to know more - [link]
Please feel free to use this if you want to.
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Comments: 40
thank yoUUU (it also fits my aesthetic which is greaT aHA)
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My knee caps are weak due to this illness, so I have problems spinning around fast, and running for large amounts of time.
The other joints on my body are however not as heavily affected.
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Thank you for the stamp. I have practiced karate since i was little ( I'm 15), and i have been diagnosed with this condition about a year ago. I was going to the world's championship, i trained hard for years. I loved ( and still do) karate. I trained multiple hours everyday. Now i can't take a simple hour and a half training session without stopping because of my hips. I need to stop writing during tests because my hand hurts. I wake up at night because my hips are killing me.
It hurts my body, but it hurts me emotionally too, and sometimes people don't see that and just say " You've always been the toughest! Get over it!".
I came looking for a stamp that would make me realize i'm not that alone, and i got that reassurance. Thanks, even if it might not seem much of a big deal.
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I have hypermobility- it affects my walking and I can't overexert myself too much. I also get a lot of pain with it too,especially in my legs and hips....it runs in my family, although I have it worse than everyone else...><....
but it does make me more flexible too ^^
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I`m hypermobile,but It doesn't effect me painfully,It might later on with arthritis though. Well maybe very slight pain in the pinky finger. It's just in my hands,toes and right shoulder and arm. I just called it double jointed.
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If you aren't already a member I suggest joining as you can get lots of advice there. I have arthritis and fibromyalgia, as well as EDS type 3 (Hypermobility). I pray that you do not get any further pain in the future as it can be very frustrating. If you ever need someone to talk to about it, you know where to find me.
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Okay thanks,I`m now wondering about other hand pain I`ve been having when typing or playing video games. I wasn't really sure what it was. My Mother has arthritis and tiny bit of hypermobility,My Father also has Hypermobility so its obviously genetic.
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Hypermobility is horrible. I've had it/EDS for about 7 years now, and I've been bullied for it a lot! But as the other comments state, it's definitely misunderstood and needs more attention. But thank you for this stamp!
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You are very welcome.
I sympathise completely as I have been bullied as well and was diagnosed 8 years ago.
Are you a member of ? It's a great group full of people who will completely understand you as we all have HMS/EDS.
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Oh wow! I didn't know about this group! I think I'll definitely join, thank you!
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No problem. The deviant who runs it is amazing and she has illustrated a children's book.
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Oh wow! : D It seems like a really amazing group! :3
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Hypermobility Syndrome...I think I've heard of it from an episode of Mystery Diagnosis. Is it where your joints are missing a protein that give the ligaments (and other such connective tissue) their strength, so the body copes with this disorder by dropping things prematurely or purposefully succumbing to gravity to prevent worse injury to all of the joints?
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You are absolutely right. We also fall a fair bit and appear clumsy. It is painful as the joints are unstable and move in ways they are not supposed to. Although there is no cure we cope as best we can, and despite the obvious drawbacks I have a normal job and drive a car.
Thank you for your interest.
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My dear fiancee ~AbyssalJT has EDS as well. He does well, but some days (like rainy days) it can hurt a lot. He's an inspiration though. He does a lot and can exercise and over the years he's got a lot stronger and walks better. I hope more awareness is spread especially in the medical community. Thank you for this stamp!
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You are very welcome. I am sorry to hear about ~AbyssalJT and he has my sympathy regarding the painful days.
I walk whenever I can and excercise as much as the HMS will allow me as well.
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Thanks. :3
He's walking better with new orthotics (sp?)that he had custom made to his feet. Rainy days are the few tough days, though.
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My whole family suffer's from this
living with this disability really brings life down sometimes.
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A lot of my family do as well (from my dad's side of the family), so you have my sympathy and thoughts. I agree that no one who doesn't have it doesn't understand fully as it is a 'hidden' disability.
There are always others , including me, who you can talk to on dA if you are feeling down.
Thank you for the fave.
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Hello there. Have you ever heard of Ehlers-Danlos Syndrome? I was diagnosed with HMS first but then later EDS. It has now been discovered that HMS is EDS Hypermobility type. I've been searching DA for fellow sufferers for the past year and I'm surprised that I never found this.
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We are very good at hiding in the shadows! I have heard of Ehlers-Danlos Syndrome from the HMSA website [link] which is very informative.
I aim to slowly make both HMS and EDS better known and hopefully understood in my own little way. I have also written a short piece called 'Confessions of a Hypermobile' which hopefully allows people to have a glimpse into the life of a sufferer without making it too heavy to read.
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I've seen that site before. it is very good. I was diagnosed with HMS at 14 but it didn't last long. In the same year it was changed to EDS. xp
I'll go look for that. I'm sick right now so that's why I'm slow. Did you post that here on DA? If so can you link me? I'm not overly focused at the moment. That's great what you're doing. I work to help fellow suffers and give support because having support changed my life and I want to do the same for others. I have over 100 people that I have found through facebook. Are you on that site?
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You are very welcome to.
I agree, especially when it is cold and wet.
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Oh yes, VERY.... My jaw tightens up when it's cold and it hurts badly. And it gets stuck when I'm not using the right pillow...
Thank you ever so much for the points!!!
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You are very welcome!
I hope that your jaw is not playing up at the moment. It sounds very painful
Mine affects my hands, wrists, hips, knees and ankles mostly.
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Oh, same here. Exact spots... Ugh.... And my shoulders...>_o
What type do you have?
I have the Hypermobility type. I have double jointed toes... I have a really hard time standing, because really, my whole feet are messed up. They look way different than others. My aunt always told me they were really weird, but soft.
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I actually treated a girl with this about 10 years back. Her knees recurved to such a point that they wouldn't bear her weight without severe crippling pain. We had to fit her with special braces the physically blocked the backs of her knees and kept them in a straighter position, and needed to be unlocked for her to sit with her knees bent. It wasn't the most elegant solution, but it was the best we could do at the time, and allowed her to get around on her own with a walker, when she'd been wheelchair-bound for about 3 years.
I'll have to look into the stamp-collecting for it. Make an envelope next to the ones for Boxtops for Education, can tabs for CP, and Campbell's soup labels.
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I consider myself pretty lucky as I walk with a stick on bad days (like yesterday and today) but mostly I am slow and awkward but relatively mobile. I have also been pushing myself and did a fun run last year for charity to help the local hospice. I wasn't well enough this year but I will hopefully do it again next year. I walk it (last year in costume).
I am getting worse as I get older but I don't get down aboout it as I am adapting as it changes. It's nice to hear from someone who understands and has been such a wonderful help and inspiration to HMS sufferers. People with your heart and compassion help people like me aspire to do our very best to set an example. It's easy to slide into the idea that no one really understands, but then someone wonderful like you comes along to prove that amazing people live in the community.
It doesn't matter that the solution wasn't elegant, what matters is that you helped to give her new independance. A wonderful gift to give.
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I'm not that surprised that there isn't a stamp yet because it's not a very common condition, and it can be difficult to diagnose as well, which doesn't help...
And by the way, there's a really easy way to raise money for the HMSA. The link and information is in my journal here: [link]
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I collect stamps for them as well.
I am pleased to see more hypermobiles coming forward and talking. It stops people feeling alone and allows them to talk to others who understand.
It's nice to meet you.
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Ooh, I don't collect stamps for them yet. I'll try to remember to do that
Nice to meet you too
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I've never heard of this before. My (now deceased) close friend does have a son who has Tourette's Syndrome, but seems he's done much better in his adult life, perhaps medication or just time? That's the only hyper mobility that I've experienced, except when my thyroid is malfunctioning (it or the rx) and my hands start to shake... sometimes (like a few nights ago) sitting at the pc relaxing to music, my whole body went into severe shivers, as if I were cold, but wasn't cold at all. Comes on in waves, it's very irritating, I can't do anything but shiver. Requires relaxation techniques, mental self-hyp, etc., and a long hot shower, or letting it run its course.
It's not painful though. I'm so sorry you have to go through yours and with pain as well. Can you describe more about it so I can become more familiar?
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Certainly. I will link you to a little piece I wrote that gives a glimpse into my experiences [link]
I am sorry to hear about your friend and their son; and I hope that you can find treatments that will help you feel better.
Hypermobility is it seems a genetic condition where the joints are all extremely loose and flexible, so prone to displacement and wear. I got it from my father. There are also other associated conditions that follow along with it. I have spacial awareness problems, kidney problems and heart/blood pressure problems.
Please feel free to ask any questions. I will try to answer them to the best of my ability.
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Thank you. I will read your link. And again, very sorry for your condition.
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Thank you.
I have grown up with it so I feel that I really can't think of how life would be not having it. It is an integrat part of the life that has made me who I am and given me a drive to do the best that I can and try as many new experiences as possible while I can.
It has also given me the courage to talk to and make friends with wonderful people.
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So glad to see a stamp about this finally +fav for sure.
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Thank you so much. I'm glad you liked it.
I am trying in my own way to help other see that this condition exists and also to show others that they are not alone.
Thanks for the fave.
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