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DAGAIZM In reply to ??? [2017-08-19 14:18:00 +0000 UTC]

May I ask what was the reason of Your revalidation process?
My problem is not solvable by training - I can't do some positions cause it is just dangerous for me, so I don't expect heavy training like it usually is with more common situations...but I really don't know what to expect...

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illustrisdesigns In reply to DAGAIZM [2017-08-19 14:49:39 +0000 UTC]

Mine was not solvable aswell, I was diagnosed with Rheumatism and Poly/Autonome neuropathy (wich is nerve damage to the nerves). But I found the revalidation process very helpfull the first thing they said was that they could not make me better but they could make my life better by helping me cope with it and teach me how to but less strain on my body but a achieve more. For me personally it teached me to let go of old life and dreams so new dreams could take it's place. It is because of the revalidation that I make art the way I do today. Years back I loved to paint and clay, I could not do that anymore. I had a hard time letting that go so by trying i would get dissapointed. But the revalidation teached me to look around and helped me with little pliers wich makes wire working the perfect thing for me. Also they teached me to re-arrange my time so I don't drain myself to the point that recovering from what ever I am doing is taking days and days. Also they helped me with my transeport, different home etc. They gave me reall good advice. Fysically it did not help but in every other aspect a lot. Just keep an open mind and try to accept they could teach you to do things differently and by doing so it could make your life a lot better with the circumstances you are in. I wish you all the best in this process.  

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DAGAIZM In reply to illustrisdesigns [2017-08-20 08:12:42 +0000 UTC]

Thank You for the words of hope, for me improvement would be already if the give official diagnose and some name of this condition, until now I hear only from my cranio~therapist that it is something between whiplash and broken skull, it is not broken but the effect is very similair, and whiplash I suffered while attack... first 3,5 year was just missdiagnosed and nobody believed me that it still hurts... when some fysio guy finaly figured out what it was, he send me to osteopathy, but this osteopathy did only lot's worse, since then I can't sleep on that left side and it hurts much more than before... I found self -in gift shop!- information about cranio~therapy and that's only thing that helps, - for a while and can't set it back totally in good place, so I am afraid that without heavy operation on my skull -(setting some screws or something like that)- my life is not able to be quite normal again...
I deal with it for so long that I don't know what new ways they could tell me, but I am curious... it is not visible from outside and without proper name it is hard for people to understand it or accept it...even my own family turned away from me thinki ng that I "just want to stay in past and pessymistic" - which is not truth and only hurts more to hear that... I do whenever I can some art or atleast fotos and always in rather positive way...
So proper diagnose would help me a lots.


Oh my! That is difficuld situation You are dealing with, I am so sorry for...
I can only say that I use homeopathic Arnica pills that help me be strong throughout the day, mayby it would help You too...if I forget to take them in the morning than aroud 4 pm I am very weack, and the days I am in pain or more exhouted I take twice a day...it helps the body deal with any shok or exhoustion, there is as wel cream made with this plant Arnica Montana that helps to send back the blood to the right place, like in cause of blue spots after having some accident...it is homeopathic so it is no problem for any other medicines or even babies...someon gave it to me for just before the birth of my second child and it does wonders, also if the baby is teething or sick.
Since than (over 19 years!)
I try to have it always... when it is bad I am like 90 y. old persone or worse...so the Arnica really helps me.

Good luck!

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illustrisdesigns In reply to DAGAIZM [2017-08-21 19:31:28 +0000 UTC]

So sorry to hear, I really hope the revalidation will help you! I wish you all the best and I hope you find ways to cope with it better. They will ask you what your biggest struggles are, not only fysical but also emotionally, mental and socially. I hope they can work at the social part of it aswell, seems like a large part of your frustration and sadness comes from not beeing understood. Thanks for the advice about Arnica, I did already know about it though. Take care my dear, all te best to you!  

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DAGAIZM In reply to illustrisdesigns [2017-08-22 15:30:33 +0000 UTC]

Thank You so much!
As well for telling me what I can prepare myself for in that visit... and yes, it is difficult cause when I feel better nobody can see that I still feel presure and it increeses with movement, but I move anyway, and that makes them not belueve that it can be so bad when it's worse, then I almost can't move cause it hurts with every change of position...
So atlest having the name of this condition like a sort of label -(I know it sounds bad, but it...)- would already help...

O! I am so happy You know already arnica... if I forget to take it, half of the day I may go to bed and fall asleep...
For the rest I don't use any medicaments, pain killers don't help for that...

Sometimes I can't even draw due to holding the head down while drawing or writing...
Can't use computer cause looking from the keyboard to the screen and back again is too much - to fast moves... so I use my fone for everything...

I wish You and Your family lot of health!
Take care too!
Daga.

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illustrisdesigns In reply to DAGAIZM [2017-08-23 06:28:19 +0000 UTC]

You are welcome my dear, take care!

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