Comments: 16
amy1961 [2013-02-10 16:28:51 +0000 UTC]
Thanks for raising awareness - from another person who suffers.
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Ogrefairy [2012-05-13 00:12:20 +0000 UTC]
Your work was featured here for Fibromyalgia Awareness Day.
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Jedania In reply to Aseamlessbonds [2011-06-14 23:55:40 +0000 UTC]
Thank you for faving. Yep Fibro is definately a pain in the everywhere. Do you get good support from your Doctor, Family and Friends? I ask this because Doctors are hard to convince that there is anything wrong with you, Family kinda believe and friends just think your lazy, well that is my experience anyway, and on Facebook I have a lot of friends with Fibro who I met through a group on there and they all say pretty much the same. *gentle hugs*
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Aseamlessbonds In reply to Jedania [2011-06-23 11:01:16 +0000 UTC]
It's a pleasure sweetie!
I have had some support, but my doctor didn't even know what it was to begin with, he sent me for physio! Things are a bit slow in the UK when it comes to things like this, the best support I have found has been here on DA, and from what I have learned it's a pretty individual experience, I have it in 9 points from my neck to my ankles, and suffer depression and fatigue too
You are right about peoples attitude to it, I didn't see or hear from any family for over 3 years, and I am only just starting to build bridges with them again. My x husband thought I was putting it on, even though I was bed ridden for 18 months, and could barely put one foot in front of the other.. Friends have drifted away too, and it really messed with my mind for a long time....But my sons understand, they have been my rocks, and friends here on DA have been the best that I have known, I have learned more from them than from my doctor that's for sure!
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Jedania In reply to Aseamlessbonds [2011-07-07 20:39:21 +0000 UTC]
I'm in the UK too, my doctor isn't very understanding at all, all she tells me is to go swimming, I'm on anti-depressants, pain killers and anti-inflammatories. I've seen a Reumatologist once, I've asked to see them again but my doc says I can't see them as I see them in Nov 09! I've also struggled for 2yrs to get help with benefit and had to go to a tribunal to get anywhere.
My family don't really understand, they just think I'm lazy, thankfully my boyfriend is my rock.
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Aseamlessbonds In reply to Jedania [2011-07-08 12:56:22 +0000 UTC]
Sounds like a similar story, I was working when I first got it, and luckily I was doing enough hours that I got sickness benefit, and when I was signed off completely long term incapacity benefit, but I can't get any other help which sucks! People who are on job seekers get more help. I have not had a washing machine since before Xmas, and can't get any help towards getting one, I tried for a crisis loan, but was told I couldn't have one because I wasn't on JS
My so called specialist recommended aerobics!
I am glad that you have someone on your side sweetie, it's very hard going when you have a chronic condition that is "Invisible" You have to develop a tough skin when dealing with these people I get soooo pi**ed off with friends who I used to make an effort to visit saying "But I'm on Face Book"! I refuse to use it now, I told them that if I'm not worth popping along the road to see in person that I didn't want to see them at all, that's not friendship in my book, they have jobs health and cars but I am still expected to visit them? I think not! We are worth more than that!
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SapphireandIron [2011-05-13 14:58:03 +0000 UTC]
I have had cfs for over 12 yrs myself. {{{{hugs}}}}}
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SeraphimFeathers [2011-05-12 23:03:28 +0000 UTC]
I have featured this piece here to help spread awareness. [link]
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SeraphimFeathers In reply to Jedania [2011-05-13 02:47:33 +0000 UTC]
Thank you. It is hard. I've been to so many docs, and still don't get the help I need. It's like a never ending cycle.
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SeraphimFeathers [2011-05-12 22:44:03 +0000 UTC]
I love this. I have fibro too. Thank you for helping spread awareness!
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