Comments: 114
Sarah-Vafidis In reply to MistRaven [2009-06-02 01:25:31 +0000 UTC]
You're very welcome!
I found you via the FM, ME, CFS club.
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MistRaven In reply to Sarah-Vafidis [2009-06-02 01:32:27 +0000 UTC]
which clubs are those Im thinking it some I left...
its nice to meet ya
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Sarah-Vafidis In reply to MistRaven [2009-06-02 01:33:59 +0000 UTC]
Nice to meet you too. Do you also suffer from ME, FM, CFS?
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Sarah-Vafidis In reply to MistRaven [2009-06-02 01:39:38 +0000 UTC]
Aw, you poor thing. I can relate. I don't have Lupus, but I have a heart and brain problem and ME and FM/CFS resulted.
How long have you had it yourself?
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MistRaven In reply to Sarah-Vafidis [2009-06-02 01:41:56 +0000 UTC]
first off let me apologize when I asked which clubs those were as soon as u asked which do I suffer from I realized what they were.
I have had lupus over 25 yrs, I was told I had FM last year and CFS Sorry to hear about your suffering hun
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Sarah-Vafidis In reply to MistRaven [2009-06-02 03:15:02 +0000 UTC]
I couldn't agree with you more on that, I also refuse to let this crap control my life. I control my life and the illnesses are just setbacks.
You are very strong minded indeed. Did you have a bad experience in the hospitals? I did. I was seeing a team of 5 doctors who thought I was insane. They didn't believe in the illness. Only 'insane mental' people got this. I walked in, and was wheeled out in a chair a month later. I still need it thanks to them. They totally mistreated me.
I'm glad that you don't need to see your doctors much. Take good care okay!!
I shall watch you. You're stuff is amazing!
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MistRaven In reply to Sarah-Vafidis [2009-06-02 03:23:13 +0000 UTC]
well honestly I did not have a bad experience while in hospitals its just I was so young and mentally pushed to my limits. They always kept me 16 + days at a time always in the hematology/oncology ward so all my room mates were dying. I couldnt handle it anymore and left.
I control it pretty good but sometimes it wins over my body problem now is I have no health insurance so seeing a Dr is a rare thing.
Now the only meds I take are water pills, blood pressure and cholesterol meds and thats cuz i get them for 4.00 a piece.
I take ibuprofen for my illness it helps with the inflammation.
I am so sorry that this hospital mistreated u did u sue their ass?
Thanks hun I will watch/add u as well
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Sarah-Vafidis In reply to MistRaven [2009-06-02 03:36:50 +0000 UTC]
That wasn't a very pleasant place to be, especially at that age. I am 15 and I am sure if I was placed in that ward, I would leave as well.
Yeah, sometimes it takes over, but keeping strong and positive really helps! I know having a healthcare card gets your medication for $5.30 for everything, in most cases!
I hope the meds seem to help you out!
We are seriously thinking about it! I am so pissed off at ALL of them. I feel like turning my back on the medical world. That doesn't put me in a better situation though. We are going to do something about it though, they had no right to treat me like that!
I mean, I have problems walking right, I got out of my bed to go to the bathroom and I fainted and fell. The night nurse was yelling at me to get up and get back to bed. I had to go to the bathroom! I fainted. She's a nurse, shouldn't she help me up and check if I was okay HAHA!?!??...IDOT!
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