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DeviantArtSecret — Secret. 5463
Published: 2009-04-08 10:19:55 +0000 UTC; Views: 3584; Favourites: 27; Downloads: 8
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The Secret teller would also like to say.I have had lupus for two and a half years now, and I have yet to learn to live with it. I won't quit, though; I will fight.
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Comments: 28
you can do it! My father and I have an auto-immune disorder, (hereditary) and we are fighting too. I know you can do it, you have the strength. Try not to think of it is a dying faster. I know sometimes you can't help it (god knows i think that too) but medical science is always progressing. They could find a cure. be hopeful!
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Live, don't let ANYTHING harness you from being happy.
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I have felt the exact same way.
Whenever we had to do one of those stupid little '
I'm probably not a good role model for dealing with this, while I look after myself really well, I refused to talk about it, and whenever someone tells me news about it, I don't listen to it. I don't read the support magazines they hand out, and I don't go to the support groups I'm invited to.
I just want to pretend it's not there as much as I can.
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I'd think that would be a normal part of the diagnosis.
I'm glad you're being strong.
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The best way to cope with "dying a little faster than every one else" is to live a little better. Have fun, make lots of friends. Be nice to people. Have you ever seen "The Bucket List" or heard "Live Like You Were Dying"? They both explain it better than I ever could.
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I don't know if there ever is a way to just "live with it", but as long as you're fighting, that's all that matters. ^_^ Good luck!
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i know a little girl who has lupis. they don't think they can do anything for her, except maybe make her comfortable and happy for whatever time she has left.
it breaks my heart.
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I was self-diagnosed with an autoimmune disorder, Coeliac disease, a year after you. I don't know much about lupus, but I believe it's a little more dangerous than coeliac. Regardless, I still get down about how frakked up my insides are and wondering what the long term affect will be. You can't let that thought ruin the life you do have though, whether it's shorter than the majority of the world's life or not.
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We're all dying. I could be hit by a bus tomorrow. None of us knows how long we have, not really. Keep smiling and laughing - we all need to enjoy what we have left!
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...I know how you feel. 
...that's my silver lining, anyways.
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Hmm, you mentally went the complete opposite than I did with my Auto-Immune disease. At first I withdrew from the world and stopped talking to my friends because at that point in time it was bad enough I did almost die, lost about 40 pounds and couldn't process the nutrients from my food so my body started eating itself until the point where I actually began to rot (seriously). Then through a huge dose of steroids, immuno-suppressants, IV nutrition, etc. Did I finally rebound, oh yeah and 3 surgeries. Kind of fucked myself over on that one though because I abandoned all my friends and threw them out of the loop - now I'm getting back into the world and starting over and back to where I feel Invincible and Unstoppable. I still get depressed from time to time because I know it does limit me in the end but life is still worth living and if we're going to make it through might as well live it the best damned way we can. Instead of wallowing in our self doubt and pity.
So best luck to you.
On a side note at least it doesn't sound like you have as much to contend with as I do, what between the Occult Spinabifita, Gilberts Syndrome, Spondylolisthesis, Crohn's Disease and the tumors it has left throughout my digestive system, woo. I have plenty of surgeries to fix those problem - well except the Gilberts and Crohn's.
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Keep fighting. Find others in your situation and build a support group.
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That's gotta be difficult, and I can understand that. But whether you are or not... It doesn't change the fact that you still have the ability to seek greatness and live out loud. n.n Heck, maybe you have better reason to than everyone else. Who knows...?
- Tyros
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No day, but today, ST. <3
May you keep fighting and I hope you live a wonderful life!
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Just think that you've got more opportunities to rush out into the world and say, 'hello friends'.
Life was given to you.
Throw some back out there.
We love you, ST, okay?
Promise.
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well if you don't look at the alcohol level and nicotine level in peoples life...
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My father has lupus, and it's hard on him and our family. You just have to be strong, and make the most of life.
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Join the club.
When my mother told me- I felt like screaming at her. I mean jesus- "WHAT ELSE IS WRONG WITH ME?!"
Nobody understands how I feel.
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I could be a total ass an make a House joke, but I won't. That would be rude.
Instead I'll say: I can honestly say that I've never met anyone with lupus so I don't really know what to say. Just keep fighting, that's the best you can do. There's always hope.
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My mom does too.
she was down and out until they found some effective treatments and she JUST started co-owning a spa with her best friend and is doing massage therapy again to others (something she couldn't even DREAM of when she was only able to sleep 16hrs a day from her body attacking itself. she now has more energy than I do and i'm only 21!!!
there's hope i tell you!!
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I would make a House-related joke, but that would be horribly rude.
I already feel bad for thinking of it.
All jokes aside, I do hope you continue fighting. Some people just say "I can't do this" and quit.
Keep up that can-do attitude and live life to the fullest is all I can say.
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I was too.... but your right that would have been rude and insensitive. I agree with Medxcal it's fantastic that you have decided to keep fighting rather than giving up. this probably won't help and most people will probably flame me for this but... you might not be dying quicker but... you're certainly dying in a more interesting way?? =_='' sorry that might make it worse but.. hope it helped??
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I'd say... don't think of it as if your dying faster. Think of things... as that you should live them to your fullest. Try and make steps that you wouldn't look back on, and always try to be happy. Make those around you happy, and let them know that you love them/care about them with all of your heart... because every moment matters, whether your ill or healthy, it doesn't matter... its all the same for every person.
I'm really glad your going to fight this ^^ you have a lot of strength many people would wish to have...
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